May 122012
 

Another guest blog today because this one should be read every Mother’s Day.  This one is from another friend named Sarah – Sarah Tacoma.  She blogs here.  Get the tissues!

19 Weeks Pregnant – that’s a magical time in a pregnancy. You’re almost half way done, you can feel the baby kicking AND you get to finally have the ultrasound where you can find out the sex and really see the baby. I had an exciting date with a 3D ultrasound.

 

As the doctor started the ultrasound – he first told us it was a boy!

 

He moved the paddle around some more and then the doctor told us that the baby had a calcium deposit on his heart and that was a marker for Down syndrome and did we want to get an amnio. Shock. Sadness. Fear. Dread. I went ahead with the amnio and was numb as I paid the nurse extra money for the fish test so we could find out in 24 hours. The next afternoon – I got the call that – yes our baby had Trisome 21. I told the lady thank you, hung up the phone and started screaming. 

 

There is an enormous grieving process that you go through finding out your child has Down syndrome. Retarded. Special Needs. Cognitively Delayed. Disabled. Different. I lost a child that day. I lost the baby I thought I was going to have. I lost the life I thought I was going to have. And really felt my son Quinn had lost the sibling I had so pictured for him.

 

As the weeks went by and the depression continued I really felt that I couldn’t connect with the little boy inside me, who had no idea how sad I was because of him. And one day at about 23 weeks I decided that I needed to name him – so maybe I could start bonding with him. So one morning I called my husband at work and said – I want to name him now and I just know his name is supposed to be Gideon Michael. And God bless Mike – he took this surprise phone call in stride – and said “okay then, that’s his name.”

 

Two weeks later we were sitting in church and to be honest I just wasn’t paying attention. The minister was reading a Bible passage “blah…blah and the Israelites…. blah.. blah..and then Gideon….blah blah blah.” I sat up straight and whispered to Mike – did he just say “Gideon?” And Mike nodded. Now I have attended church most of my life and not once up to that point had I heard a sermon on Gideon. Briefly – This is the story of Gideon – The Israelites were at war with the Midianites and losing big time. And God came to Gideon and said you are going to lead the Israelites to victory, but you have to reduce the army of 22,000 men down to only 300 soldiers. Gideon did not understand how he was going to win with so much less at his disposal, yet he followed God’s orders and did indeed lead the Israelites to victory. As soon as the Bible passage was done – the Pastor, who really had my attention now, said “Well this story is about a man who had a huge disadvantage. God took away from Gideon. God gave Gideon less. God gave Gideon less to work with than other men. And yet Gideon overcame, because God was with him.”

 

Less? Disabled? Disadvantaged? Maybe, but with a little faith on my part I was pretty sure God was telling me that it wouldn’t matter. 

 

When we first got the diagnosis, it was a string of negative adjectives that tried to label a baby we hadn’t even met yet. And initially I dwelled on the negatives of his diagnosis and not the vibrant portrait of the beautiful, quirky person that Gideon is growing into. At 2 years old Gideon’s first full sentence was “Ma! I La You Ma! And like most little boys Gideon loves to zoom anything that has wheels – cars, trucks, trains & airplanes. At 3 years old he has more ASL signs (100+) than I do. He adores his big brother and does his best to imitate him. He’s super polite and says “hi” and “bye” with enthusiasm to anyone coming and going. And my favorite – is that when I walk in that front door – Gideon stands up and cheers that I am home. Ma! Yeah Ma!

 

So here are the words that REALLY describe him. Exuberant. Joyful. Determined. Stubborn. Practical Jokester. Smart. Affectionate. Loving.

 

Nine out of ten babies after diagnosis of Down syndrome are aborted.

 

90%! I’ve been in that black hole of grief when that decision needs to be made. Gideon and all the other kids with Down syndrome that I have had the privilege of getting to know LOVE their life. They live it with, quite frankly, a zest that is unmatched by the rest of us. I truly believe THAT is the measure of a worthy life. THAT is the identification that truly maters.

 

gideon.jpgAnd my Gideon, the boy who God gave less to, well he overcomes again and again and he does it with the biggest smile and lovingest heart I have ever experienced. 

 Posted by at 08:12
May 102012
 

*Alisa’s Note: Today’s guest post is from one of my blogging friends – maybe the first blogging friend I had.  Sarah’s blog is still one of my favorites. [Check it out here.]   She is a gifted writer who throws the doors wide open on her thoughts.  She was gracious enough to write a guest blog post on the topic of a ‘Teachable Moment’.

 

I wish I could say I was a quick learner.  I wish I experienced an “ah ha!” moment once and then always carried that little lesson around in my pocket, never having to relearn it.  Alas, I am not.  I am more of a painstakingly slow learner, often having to allow God to remind me, nudge me, and even sometimes smack me with the same life lessons over and over again.

 

On January 14 of this year, I became a mom for the first time.  My beautiful baby boy was born, and three days later I found myself at home with this little person who needed my attention all the time.  Rewind to about two weeks prior his birth and you would find me constantly on the move.  I’m a do-er.  Every week I made my to-do list of errands, household tasks, projects I wanted to complete and people I wanted to connect with, and more often than not by the end of the week my list was accomplished–every item neatly crossed out with a highlighter.  I’ve spent 23 of my 30 years as a full time student, I know how to multitask and I know how to get things done.  If I’m honest, I’ve found a lot of pride in how productive I’ve been in a given week.  Friends used to laugh because when we would have a 3 week break from classes I would not just travel to one place–I would usually pack my vacations full of multiple cities or states so I could visit as many friends and family as possible. Yes, aside from the one month in grad school where I had mono, I have always enjoyed getting things done.

 

Fast forward back to this winter and the arrival of my little one, and all of a sudden life looked drastically different, more so than ever before.  All of a sudden my most important “task” of the day was sitting in a rocking chair for hours on end feeding my baby.  All of a sudden I found myself laying on a couch doing “nothing” but holding my child who couldn’t nap anywhere but in someone’s arms.  The dishes sat there, untouched.  The laundry was done when my parents came to visit to help out. Vacuuming or cleaning the bathrooms?  Ha!  Running lots of errands and connecting with many people?  No longer an option with my son who hated his car seat and left me feeling foggy brained and incapable of connecting with others in a meaningful way.  Those to-do lists I had prided myself on were now non-existent.  And if I’m honest, so many days would come to an end and I would feel so unproductive, so lazy, and so frustrated.  Who was I now if I wasn’t Ms. Productivity?  I knew in my head what I was doing for my baby was infinitely more important than doing the dishes, but for a slightly-OCD person like myself, sometimes all I wanted to do was clean my kitchen!

 

It’s been four months now, since the arrival of our little one, and I think I am finally beginning to learn my lesson.  The other day I laid down with Aidan in my bed to see if I could settle him down for his afternoon nap.  He snuggled up next to me, nursed for a few minutes, and drifted off into a peaceful sleep.  “Alright!” I thought.  “I can finally go get something done!” As I lay there thinking about what I was going to go sneak off to accomplish, it hit me.  The only thing that was important to me that day was being with my son.  My kitchen was relatively clean–not perfect, but good enough.  My husband and I have plenty of clothes, I didn’t need to do laundry just because the basket was full.  All of a sudden grilled cheese sandwiches sounded just fine for dinner, no need to go prep anything fancier.  As I watched him rest, his little lips still making that sweet sucking motion in his sleep, I realized there was no where else on earth I wanted to be.  I was being completely “unproductive” by my former standards, but when I think about what really mattered in that moment, I was doing the most important thing I could have chosen to do–I stayed snuggled up next to his little body and held him as he slept in the safety and comfort of Mommy’s arms.

 

God commands us to “be still, and know that I am God,” and I think part of what God had in mind here is that He wants us to surrender our to-do lists to Him.  He has spent the past 4 months teaching me over and over again a new way to define “productivity.” He calls us to just be, to let go of all the things we frantically try to accomplish to somehow prove our worth here on earth.  He whispers a reminder “Sarah, you’re so much more than your list of accomplishments, that is not what gives you your value or worth.  Be still, let me be God, you worry about being fully present for the people I’ve placed in your life.”

 Posted by at 07:31
Apr 292012
 

No one except the 27,000 people at the Rose Bowl last weekend.

My sixth grade daughter and I joined the Kiwanis Kids Team from her school at the 10th annual Walk Now for Autism Speaks.  She signed up because she thought it was a “cool event and a great cause.”  I signed up to support her (and to get myself off the couch on a Saturday).  

As an educator, I haven’t had many kids with Autism in my classes – only three spread over the last eight years of teaching preschool.  Typically, kids with an Autism diagnosis are placed in a public preschool program rather than a private one.  

We saw many large multi-generational family groups walking together to raise money and provide moral support to their loved ones.  Many of these groups had team shirts reflecting the interests of the person with Autism: Transformers, Elmo, Thomas the Tank Engine, Superman, Sponge Bob, Tigers, even Angry Birds.

Many parents of children with Autism spoke before the walk including the actor Ed Asner.  He has a son and a grandson with autism and he was a great encouragment to the crowd.  My daughter especially enjoyed listening to him speak because she’d met him in person about a year before.  He couldn’t have been sweeter to her, posing for pictures and admiring her freckles.  She was interested to hear what he had to say about the walk and about Autism.

As we started to walk, she asked more questions about Autism. I was able to give her some answers even though I share a lot of her questions.  Standing in the hot sun, listening to celebrities and corporate sponsors talk about Autism, I may not have gained much new head knowledge, but I certainly gained some new heart knowledge: Autism affects families, all kinds of families.

You can see some pictures here.

 Posted by at 09:21
Apr 282012
 

I took a small, unscheduled driving tour of downtown this week on my way to jury duty.  I was pretty sure I knew how to get where I was going.

I didn’t. 

Of course, Maggie, my faithful GPS unit, was in the other car and I don’t have a smart phone.  Luckily, I do have a smart husband who is better than any On-Star system. I had left home with my spirit of adventure, so even the temporary detour was interesting rather than infuriating. 

I strolled into the jury room at 9:30 a.m. having earned this luxury by watching the jury orientation videos online at home.  And then I waited….for hours.  Obviously, I knew this might happen and so I brought my laptop and kept up with work as much as I could. 

Long story short: eventually, I was released for a TWO HOUR lunch break. 

Let the wandering begin! 

My first thought was to head over to the MOCA (Museum of Contemporary Art) since jurors get in free, but I wasn’t sure exactly where it was.  My spirit of adventure had convinced me I could survive on wits alone.  The phrase “We don’t need no stinkin’ map!” kept running through my head, so off I went. 

I soon came upon a collection of strange black lumps outside a newish looking building.  “The MOCA?”  I thought. The smooth black sculptures invited me to run my hand over their curves.  (Which I did not for reasons I may someday explore with a therapist.) 

This is my favorite of the collection:

Favorite Black Lump MED

The building was not the MOCA, but LAPD headquarters.  I’m still thinking about whether that changes how I view the sculptures.  They are the work of Peter Shelton who does, in fact, have work installed at the MOCA. You can read about Police Chief Bratton’s reaction in 2009 when the work was installed here. 

Since I did want to find some food on my lunch break, I pressed on.  I passed City Hall park (under construction), the surprisingly striking CalTrans building, and never found the MOCA. 

I did, however, stumbled upon that rarest of establishments: STARBUCKS! 

Now before you start thinking my spirit of adventure is a corporate shill, let me explain.  This Starbucks had quite a few features to recommend it:

  1. Free wifi
  2. Caffeine
  3. Plenty of outdoor seating in the sun
  4. Live Music 

The live music was the clincher for me.  A mournful trumpeter had set up on the corner opposite the Starbucks and was serenading the whole block with something resembling Johnny Mathis’ “Chances Are”.  You could feel his heart coming through each phrase.  Remarkable! 

As my lunch break came to an end, I reoriented myself and trekked back to the windowless corridors of the courthouse to await my next adventure satisfied for today and determined to wander again. 

 

* NOTE: Here is a more professional picture of my favorite black lump.

P.S. I also found out the MOCA was closed that day.

.

 Posted by at 09:11
Apr 242012
 

I NEVER bargain with God, but, this time, I did.

“Lord, please get me out of jury duty and I’ll….I’ll….”  

I’ll what?  What would be a fitting wager?  
“I’ll make the most of the time You give me?”
“I won’t waste time on Facebook?  
Or how about the safe, fall-back “I’ll give you all the glory”?

Apparently, whatever I came up with wasn’t good enough to cover the whole week.  After being spared on Monday and Tuesday, I’m required to report to the downtown courthouse on Wednesday morning.  

And I was worried I wouldn’t have anything to blog about!

Sending me downtown can be dangerous – I people watch, I explore, I may even have a teachable moment.

Stay Tuned!

 Posted by at 20:39